Let’s talk about Respite!

I recently received an email from another support organization (FASD Coalition of Ottawa) in Ottawa that contained a great document on respite options in Ottawa. I thought it was so thorough and well organized that I asked if we could share it! Thanks Elspeth!

Hope you’ll find it useful.

 RESPITE CARE NOTES & SUGGESTIONS    Prepared by Elspeth Ross rosse@ncf.ca 613 446-4144 

Respite is a temporary break from caregiving  for children/youth or adults with disabilities – in-home or out of home, from a few hours of “babysitting” to a program or overnight to weekend or longer.

Respite was identified in a 2008 survey of Ontario care & service providers as one of the highest needs for families affected by FASD. A 2010 FASD provincial study investigated the effectiveness of respite services available for families of individuals with FASD, and made recommendations. http://www.fasdontario.ca/cms/resources/stakeholder-publications

Parents/caregivers can benefit by getting a break from the demands of caregiving. Respite can keep a family together. Caregivers use time for many different needs i.e. for rest & relaxation, to shop, clean the house, attend adult events. The child or youth can benefit by meeting new people and having new experiences. Families are concerned about finding trained care providers, quality of care and costs.

Costs range from $14 to $30 per hour; $30 to $250 per day, $150 – $519 for a weekend.

Funded respite is available to families of people who qualify as developmentally disabled in Ontario.

For children, apply for ACSD, Assistance for Children with Severe Disabilities. http://www.children.gov.on.ca/htdocs/English/topics/specialneeds/disabilities/index.aspx

East Region, Ottawa 613-234-1188, 1-800-267-5111

For adults, apply through DSO Developmental Services Ontario  www.dsontario.ca   1-855-376-3737  http://www.scsottawa.on.ca/index.php/dsoer/  Service Coordination. DSOER Developmental Services Ontario Eastern Region.  People with FASD (& Aspergers) are often too high functioning to qualify. It is good to apply anyway and show the need.

City of Ottawa Special Needs programs –  give children, youth and adults with special needs, the opportunity to participate in year round programs that provide recreation and social programming.

http://ottawa.ca/en/residents/parks-and-recreation/jobs-and-volunteering/special-needs#P54_2765

613 580-2424  specialneedscitywide@ottawa.ca

Special Olympics http://ottawa.specialolympicsontario.ca/    Year-round sports, training & competition opportunities. 613 860-6184

www.respiteservices.com   Ottawa – Community Respite Services. Information and links to respite services for children & adults. This includes access to workers in a Special Services Worker Bank.

Service Coordination – Daniela Bara – 613 748-1788 ext. 240 – pamphlet available

OCAPDD  Ottawa Carleton Association for Persons with Developmental Disabilities  Respite Services in a respite home – French & English – prefer 7 days – Carole Perrault 613 225-5561 ext. 360

Association pour l’integration sociale d’Ottawa – respite  in French – Emilie Falcon 613 744-2241 ext. 240

Association québécoise des troubles d’apprentissage Section Outaouais report of respite in French  for a child with ADHD – low cost

Blackburn Agency – BlackBurn Residential and Respite Services for Youth – Karen Braley 613 295-1474

Sonshine Families – respite weekends at Sonshine Cove all year & summer camp – http://sonshinefamilies.ca/ Cathy Godard 613 834-8187 ext. 28 cathygodard@sonshinefamilies.ca

Partners in Parenting – respite care in one of their foster homes www.partnersinparenting.ca/ Christine Rondeau 613-229-7599

Vanier Community Services Centre Family Outreach program – for single parents with no support – volunteer families provide respite – Celine Paquette 613 744-2892

Main Street Community Services, Stittsville – overnight respite, summer & March break camps – Erika Winfret, Program Manager 613 831-6606

Greenland Country Haven, Kemptville www.greenlandcountryhaven.com Debra McLean 613 806-0690

Children’s Aid Society Ottawa-Carleton – Adoption – does not provide respite services in general – families need to go through Child Protection

Families who adopted through CAS contact Adoption Supervisor Deanne Walters ext. 2745 or Andree Guillemette ext. 2784 about post adoption support  services

Adoptive Parent Support Group (new) – private worker Lori Rosove & CAS worker Diane Ciravolo     The Adoption Source www.adoptionottawa.ca

Hiring someone yourself:

Good respite providers listen to the family and do what they say with the children, follow the routines. It is important to see in advance that the state of the house where the child will be is calm & uncluttered.

A Developmental Services or Child & Youth or Social Service worker or student who has been in placement in a classroom or group home or home.

For DSW Developmental Service Worker students email your DSW job posting for a DSW student to Algonquin College Developmental Services Worker Program to Jennifer Currie   curriej@algonquincollege.com  Provide this information: location, transportation, hours, pay or volunteer, what you expect

An EA Education Assistant who wants extra work – try a teachers’ website, or ask Special Ed teachers

Put an ad on Kijiji for someone with experience and/or education (DSW, CYW Child & Youth Worker, SSW Social Service Worker etc.), giving hours & pay – one person did this & had tremendous response, but not all suitable & qualified – but found an amazing respite worker who spends time with their son every Saturday.

A nanny agency offers short-term babysitting with qualified baby sitters Jennifer 613 791-1560 inapinch@bell.net  In a Pinch Childcare Services Ottawa

Buddy Families – If families make friends with others with children of similar ages & similar needs, then families may be able to have their children stay over with each other and get a break that way.

Several people present at the Feb. 5 FASD group meeting who live out of town are willing to provide respite. Contact Elspeth Ross for contact information.  Also send additional suggestions & corrections.

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Autism in Canada from coast to coast to coast.

Since autism is getting a lot of attention right now, we thought we would partake in a little project to see what autism looks like across the country, from coast to coast to coast. What’s available? Do the models differ much? What’s the supportspotlight like? Wait lists? Are there lots of activities to choose from? Are there many grassroots support groups? The questions are endless.

The Moms at AAO love a good research project so please come back soon for a breakdown on our first provinces: Newfoundland & Labrador, and British Columbia!